Tuesday, August 30, 2011

One More.


One more. It is with a sad heart I write tonight. The last few days have been a roller coaster to say the least. I began this year on a mission to capture my journey towards making cancer a far distant memory. I vowed that not one more man, woman, or child would have to hear three awful words, “you have cancer.” We have seen enormous progress this year and have made encouraging strides in our efforts. I have seen everything from researchers reformulating ecstasy to use as a cancer fighting agent to a shot that has cured leukemia in clinical trial patients. Yet the fact remains, everyday people are still newly diagnosed. Thousands of people hear those three dreadful words. Of course it always hits home hard when someone you know is diagnosed. On Friday my family got to feel firsthand the range of emotions again that come with the life changing diagnosis of cancer.
Little Talan, 3 years old. Sweet, innocent, lovable. Hospitalized for some stiffness in his muscles. Just as most families communicate these days, I saw some brief updates from Talan’s mom on Facebook. I saw that little Talan was under the weather and was undergoing some tests. Later in the week a sentence or two would stream through my news feed about his abnormal blood counts. Immediately my heart sank. I know all too well what abnormal blood work can mean. I told myself I was just being paranoid due to my line of work and all of the stories I am surrounded by on a daily basis. On Friday I received a phone call from my sister. My worst fears were confirmed by the first sound of her shaking voice. “Talan has leukemia,” was all she could manage to get out.
All of the emotions that came flooding over me felt strange in a way. I held back tears and quickly got off the phone to digest what I had just heard. First I wanted to cry, my heart literally ached. Then I wanted to spring into action. I work for the Leukemia and Lymphoma Society for gosh sakes, I can help him. I jumped into research mode and started frantically pulling pamphlets and brochures off of our shelves. A few minutes later I was back to sobbing. I quietly shut my office door and numbly stared at my cold and now completely unappetizing lunch. I was hurting for Talan’s family. I felt guilty for all of the things I know. I know that their life will never be the same. They will be thrown into a world no parent ever wants to be. I knew the initial shock and overwhelming-ness will wear off and the long sleepless nights and endless treatments will begin. I knew how long there road was about to be. I also knew they have no idea what they are in for. The burden of this knowledge weighed heavy on my chest.
As I sat at my desk, mountains of old memories came flooding back. Some of my best childhood memories are with Talan’s mom, Nicole. We are separated by only a few months and spent every summer together since I was nine years old. Nicole lived in Massachusetts and my father would whisk us away from Arizona each summer to spend time with our god parents and their family. We would spend hours catching up, talking about the cutest boys in our schools, playing games, making up dances, swimming in “the pond” for hours. During the school year we would write back and forth to keep in touch. Updating each other on all of the important things in a teenager’s life: boys, boys, and every now and then a new favorite pair of shoes.
As we got older and I was “too old” for family vacations we kind of went our separate ways. Each of us, on separate coasts, as young adults growing up and trying to start our lives. We kept in touch from time to time and saw each other when I would make as my father would say, “An all too rare east coast appearance.” Nicole got married and then had a baby boy. Talan. He is the light of her life. I often think of what different worlds we live in. I have a hard time imagining being a mother and I know Nicole could not imagine life not being a mother.
Now to know, one of my very best childhood friends, is dealing with so much is so overwhelming. Her strength in all of this has been amazing. It’s hard not to feel helpless when you are 3,000 miles away. My dad and my sister are there along with the rest of her amazing family and I am happy for that. It’s also hard not to feel guilty. Is there something more that I could be doing? I said not one more. Now I can’t even say not one more in my own family. Cancer is putting up a strong fight.
However, I will continue to work tirelessly towards our goal; a world without cancer. Hopefully when little Talan grows up he will talk about this ordeal as a distant memory. He will have to explain to his kids what cancer is because it will no longer exist.
Please keep Talan in your thoughts, he had his port put in yesterday and is beginning his chemo treatments. He is strong and brave, cancer always seems to pick those ones.

Monday, August 8, 2011

Planes, Trains, Auto Mobiles, Taxis, and the Metro...

Well hello there! It has been a while, too long!! I want to share with you a few lasting memories from my recent travels.

First, I had the amazing privilege of watching a small group of people achieve amazing things. Through their own determination and resolve they raised over $4000 each to participate in the Marathon de Paris in April. After a flight cancelation and a walk through some sort of a money laundering bust we were safely on Parisian soil. It was an amazing time and I enjoyed getting to know everyone’s “why”. Why they traveled half way around the world to run on the bumpy cobblestone streets without many of the comforts of a domestic race at home. It was another reminder of just what dedication looked like. There were many laughs, a few glasses of wine, and maybe a little too much Crème Brule. After careful consideration we decided to take one of our long time coaches with us, Coach Hank. Coach Hank was on a mission of his own; this trip had multiple layers for him. His father was a WWII pilot that was shot down in France. After a tiring pursuit by German soldiers and a series of tense moments, he was taken in by a French family who saved his life. Coach Hank always says, “My father survived WWII and living in hostile territory but he couldn’t beat cancer.” That was Hank’s “why”. He was here in Paris to support his runners who were running to save future lives but also to reunite with the family who had helped his father so long ago. The reunion was emotional and joyous. I felt so grateful that I was able to share a small part in this epic story of kindness, heroism, and humanity.


Race morning and working hard!

Katrina and I at the EiffelTower

Coach Hank in the front row, center

After Paris, I said good bye to my new found friends and boarded a plane to the Czech Republic. It was an amazing time with absolutely the most gracious of hosts. Excitedly I was shown around all of the nooks and crannies of Prague and absorbed myself in the rich history of this unfamiliar world that surrounded me. It was a trip I will never forget!

Two weeks later I was off again! Packing my suitcase yet again to help support amazing people who  raised vital funds to fund our mission and a cure. I hurriedly packed my bag and headed off to the airport. Destination-Vancouver, my first trip to visit our friends of the north, Canada. Vancouver was absolutely beautiful! Again, I was amazed with the courage and determination of our athletes. They all brought their own “why’s” packed carefully away in the back of their minds. I was both inspired and saddened that so many people have a personal connection. The race was awesome and the people of Canada where so nice. During the trip we were staying at the same hotel as the Nashville Predators. Wow! We got an authentic taste of playoff time in a country crazy about hockey.
As soon as I got home, I was off again for my next adventure. My baby sister, Michelle, was graduating from Pharmacy School. After 6 long years, she was to become a Dr.! It was an emotional and joyous weekend. Our family rented a house on Cape Cod and we got to spend time all together. My uncle and cousin drove down to spend this special weekend with us. After celebrating Friday the 13th in a cemetery hundreds of years old, an impromptu dance party, Brett getting to meet my whole family (even my father), and an evening dip in 50 degree ocean water by a certain crazy person (who will remain anonymous), it was time to say good bye. Our quick but amazingly fun trip will go down as one of our best family vacations. I still can’t believe my little sis is Dr. Little Sis!
A Barnstable Stroll
Friday the 13th
Graduation Day!!!
After our East Coast jaunt I headed to Tahoe to support our amazing cycle team. It was another first for me. I was so happy to meet everyone. Tahoe is breath taking and a must for everyone in my opinion.

As soon as I got back Brett and I settled into our new home and our time was spent unpacking and getting organized. Our happiness was cut short with the awful news that Brett’s aunt had passed away and cancer was to blame. Brett quickly boarded a plane to New York and spent time with his family and reminisced about all of the greatness that was his aunt.
We are all settled in now and adjusting to our new life nicely. This weekend we are off again to participate in a midnight half marathon in Rachel, Nevada otherwise known as area 51. If we don’t get abducted, we are excitedly planning our trip to Honolulu for our very first marathon in honor of his little sister, Dominie and his aunt. A few of our many “why’s”.
Whew! It’s been an amazing and busy few months. I am grateful for all of you who have come along on these journeys. Through all of this, it has become increasingly clear that all we have is each other. As well as just how important connections to each other are. All of these experiences were so much richer because of the people and the connections that were a part of them. We have been brought together to help fight an awful disease but the ancillary affects are almost as powerful, friendship, memories, and community. Together we will find a cure and enrich our own lives along the way.